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Member Since 10 Sep 2008
Offline Last Active Today, 08:58 AM

#1203610 don't want to make you paranoid, but...

Posted by scruffy1 on Yesterday, 02:55 PM

Apparently since I live in North Queensland I needed to opt out in 2016 and I already have one.


I'm not impressed.


yes, funny about that


now they're using the same protocol that they did in that "trial" to conscript the rest of the country



lack of dissent is not informed consent, but that's okay, they're liberals, so they're liberal with your "co-operation"

#1203603 The one that got away

Posted by scruffy1 on 18 July 2018 - 10:37 PM


a few decades on might have been a different story, but losing a soul mate on the ascendant is not something i would wish on anyone else  :(



I'm really sorry to hear that.  What you're describing is rare enough but to have it all taken away... Is the old adage true about it's better to have love and lost?  Or is that basically bullshit?




that's impossible to answer with any certainty


i expect that perhaps time dulls the sparkle of all things, but then i have had elderly couples as patients where it is quite obvious they are still very much in love, in a sedate but sincere way, after well over half a century together



there's the magic of having been there, and the indelible memory of shared experience which is so precious to have, and then there's the shittiness of persistently remembering how much you don't have it any more, even though i am constantly sharing the events of the rest of my life with her memory as if she is still there, because i am well aware of what her response would have been to nearly all of them, and it somehow feels that realisation keeps her alive, in my thoughts

it's a bitter-sweet joy to love a memory


i still recall quite clearly my best effort to describe the feeling when she died, which was "like the earth opened up and swallowed half of me"



i quite truly believe that all people are like a ripple in the universe, and sometimes that disturbance is so in synch that it creates resonance that persists like a standing wave, for a very long time, possibly longer than our personal existence


there is one other person with whom i share such a certain telepathic ability that it would be dismissed as delusional by formal assessment... and interestingly the common ingredient is a degree of love that transcends being together... she's not so much one that got away, but more one that never got together



and the luck of hitting that sweet spot twice in a lifetime is already beyond the good fortune many people seem to hit in a life time

#1203503 a nice soak in a bath?

Posted by scruffy1 on 14 July 2018 - 01:56 PM

i love hospital baths, which sadly are an endangered species


when i was a resident, any occasions where i was obliged to "live in" were compensated by a ginormous bath and unlimited supply of free hot water, which would see me spend several hours asleep in the bath with only occasional periods of consciousness to top up the heat - poeple always get concerned about drowning risk, but unless you are chemically sedated or have a convulsion or stroke, you will protect your airway in the event that you slide far enough




the next best / equally best bath was a friend's outdoor japanese bath, which was indeed for clean soaking (after a shower), where the heat was supplied via a simple burner which sucked in cold water and expelled heated water by convection alone; after initial fire up, it only took a few smalll sticks to keep it chugging, that you could add without getting out of the water even - wooden long tub located next to the pool overlooking the orchard... great !



our house on purchase had a horrible pink but commendably huge 1950's tub, and after later renovation, the rather smaller one that replaced it is hardly ever used, whereas the original ugly one was a certain soak at least a few times a week - better for the water bill, but poorer for my soul

#1203361 don't want to make you paranoid, but...

Posted by scruffy1 on 10 July 2018 - 09:25 PM



Come to think of it, it sounds like they should have set interface standards for retail medical record software before they tried to implement the MyHealth system.  Otherwise, what's the point?







aye, there's the rub


but that's like telling macs amd windoze and linux and android (add any o.s. you like) to co-operate


the differences between systems are their sales point, and like the white world of i-things, the idea is to lock you into a system that isn't easily swapped, without impossible extra expense


#1203293 don't want to make you paranoid, but...

Posted by scruffy1 on 09 July 2018 - 08:50 AM

i agree it has merit as a pure idea


i myself have enough medical background to have some benefit in keeping the information collated for future reference



but in an increasingly fascist environment, knowledge is power, and my faith in the "goodness" of government is pretty jaded

#1203250 don't want to make you paranoid, but...

Posted by scruffy1 on 08 July 2018 - 01:24 PM

given my faith in the feds abilities to maintain any coherent level of "privacy", and my increasing suspicion that they will use information to their benefit rather than the public's, there's a lot of potential for misuse


this would be the same federal people who were quite willing to put the whole e-contact business of the tga (therapeutic good administration) in the hands of an american firm, until i eventually had them fold after repeated "enlightenment" that they were also placing the opportunity for harvesting quite valuable data in the hands of american isp's, given the then recent rulings over there about "privacy" (or actually lack thereof


had they gone ahead, and privacy issues would be only answerable by turning up in person in a local court in bumfuck, illinois (from memory), and under u.s. jurisdiction, at personal expense of the plaintiff


eventually they cancelled the idea, but it was almost a year before they did, and despite repeated requests for progress information, i only found out belatedly 2nd hand from another interested party who supported my dissent with the assistance of hs local federal member (mine is tony abbott - say no more as to his usefulness)




i was a member of the original working group on core data set last century, and even back then it was obvious that the concept was complicated; the uk has recently lost interest in their version after several billion pounds went nowhere in making it useful; nz has a workable system using a similar idea, but they don't have state entities to run the public arm of the health system, and i daresay their government is vastly more representative of the populace than the idiots we seem to promote here

#1203215 What Did You Watch Lately ?

Posted by scruffy1 on 07 July 2018 - 10:38 AM

beautiful !


#1202674 Post Your Latest Real Life Purchase!

Posted by scruffy1 on 07 June 2018 - 09:58 PM

that's not a waste; it's part of the experience

#1202633 Needles .

Posted by scruffy1 on 06 June 2018 - 11:59 PM

you're left arm is closer to your heart



I hated it in hospital a few years ago having cold saline oozing into me through the drip, I could feel the cold ache going all up my arm ... they should warm that shit up first ... geeez..



one of the two chemo agents i had was required o come straight out of the fridge


try an hour of that versus saline at room temp


harden the fuck up - they should have added the necessary concrete




#1202630 Post Your Latest Real Life Purchase!

Posted by scruffy1 on 06 June 2018 - 10:16 PM

shaving is masochistic


i am probably more handsome with a clean face, but i am hirsute (not on top these days, but anywhere below my eye level is a rug quite quickly)


consequently, i have the option of having a passably full beard in a matter of a few weeks, versus looking untidy within a day after a shave... and eventually after a few periods of bare face in my 20's and early 30's, i've had at least a goatee and mostly anywhere from a three day growth trim to a hipster do for over two decades - a man ahead of (actually more like independent of) the trend


although i did briefly rock a frank zappa moustache complete with soul patch for a brief period, largely to see hpw many people could identify the style difference between zappa and a porn star


edit - i would be hard pressed to get a week's worth of daily scrape out of decent blades - and they are extortionately expensive for the experience

#1202601 What Did You Watch Lately ?

Posted by scruffy1 on 05 June 2018 - 04:24 PM

#1202514 What's on your mind?

Posted by scruffy1 on 01 June 2018 - 05:17 PM


I hope to speak with my mate over the weekend- with luck, he might have changed his stance and told more people. When he told me it had only been a short time since He'd been told...understandably a tough thing to process!



if the issue is fresh for him, he needs time to process the reality


the prospect of telling people he loves is something for him to need to be ready to do, and is ultimately his choice; he may prefer to not burden them with it



how others may feel about it is their problem when the time comes


my advice to people in this scenario is to make sure that the people that they love know that's the case (+/- revealing the situation), and that if there's anyone they feel needs to be told to get fucked, go right ahead - what's the worse they can do other than dislike you for your candour ?  potentially lethal illness makes you live more like a samurai than a drone - just because any day is a good day to die doesn't mean you wish to be dead, but it does mean you appreciate the magic of being alive



when my lymphoma was diagnosed, i was amazed how many otherwise sensible people started to treat me like i was going to die (we all are), and treated me like i was "a cancer sufferer" rather than someone they knew well who also had cancer


illness is something that's part of you, but it's crazy that people react as if it's your defining role... i disliked being "a cancer that looks like scruffy" rather than the same person who was having to do the cancer thing.. and it's not an heroic battle - at best it's rather over-rated ( i was lucky, and am currently in complete remission, until i'm not, or i die from a different problem); at worst it's a monotonous grind of investigation and intervention that eats into your time to be normal and live like you aren't a medical speciment


there's nothing heroic about it at all; it just is the way it is



be supportive, be encouraging, but most of all, be normal - he's still the same person so don't act like the disease makes him somehow unwise to do what he wants to do, including maintaining his secrecy until he's ready to share the problem with family - that time will come


it's not your responsibility to force his hand, but it is your role as a friend to hold his hand if he wants you to do so




sometimes it's not easy doing somebody else's "right" thing, but he's chosen you as a confidante and you need to respect his decision


sorry it's such a hard time; people die all the time, but most often they are strangers, which is far easier to accept

#1202422 Needles .

Posted by scruffy1 on 29 May 2018 - 08:04 PM

i always ask which is their dominant arm, and ask if they want it in their less "useful" arm in case they get a reaction


professional tip :  if you put your hand on your hip like "a little teapot", and pressyour hand against the hip, it is physically impossible to tense up your deltoid when you get stabbed, which makes it as painless as possible... injecting into a tense muscle needs more pressure

#1202237 My leg and the last 2 months

Posted by scruffy1 on 22 May 2018 - 05:34 PM

keep on mending, man


back to work tomorrow for me - having time out for surgery was quite nice, but eventually i have to earn a living again, especially with the end of financial year looming and quite some income from disability insurance that was received without any tax taken out... my fiscal chickens will be coming home to roost  :(

#1202178 My leg and the last 2 months

Posted by scruffy1 on 20 May 2018 - 04:20 PM

bad luck, old boy


i'm at 9 days after the hernia repair i was finally able to have


all went amazingly until i decided i couldn't avoid doing the aldi shopping trek, and pushing a few hundred bucks of groceries (that's a lot of food at aldi) seems to have provoked some secondary internal bruising; that or doing freezer gymnastics digging up frozen packets to procure the only tandoori chicken pizza on behalf of mr 15's tastes



survived my initial assault with a few days of panadol after the night in hospital (where i had a single dose of narcotics after leaving recovery), but needed some hefty drugs last night, which for me is a rare event... slowly getting better again, but it was like rewinding my recovery a week, which really distressed me as it was probably my own stupidity for feeling too good


and it hurts





get well soon, tmfp... it's been a big year (or two) for us all


best wishes